Activities
The Patient Research Advisory Group聽聽
The Patient Research Advisory Group (PRAG), created by the 91社区 Primary Care Practice-Based Research Network (PBRN), invites researchers and clinicians to participate in a FishBowl event to give researchers and clinicians the opportunity to meet with a group of patient partners to get feedback on their project. This event is organized in collaboration with the Unit茅 de soutien au syst猫me de sant茅 apprenant (SSA) Qu茅bec, antenne partenariat patient public (91社区).
In a facilitated consultation called 鈥楾he Fish Bowl鈥�, the researcher or clinician will present briefly a project to a circle of patient advisors, then step out of the circle while the patient advisors comment to each other any concerns or ideas about anything that touches patients. The researcher will step back into the circle simply to summarize what they heard and ask questions of clarification. The Fish Bowl will then be closed, and the researcher will share about the experience.
The audience of observers will then be invited to ask questions of clarification to researcher, clinician, or patient partners.
As you know, it is now expected by granting agencies and peer review committees that patient input will inform research project development and that patient advisors will have an active role during the project. We want to make it easy for our researchers and clinicians to meaningfully engage patients.
Our February 2022 experience with Dr. Tracie Barnett showed that it is always a winning situation to engage patient partners as early as possible in the process.
鈥淒uring the event, I felt like we were all on the same footing. Listening to the patient partner discussion brought me some insight into their main concerns, and it made me realize that it is never too soon to reach out and collaborate with patient partners. I see the event as an essential step that is foundational to a true collaboration.鈥� 鈥� Dr. Tracie Barnett, researcher
If you are interested in benefiting from a consultation with the Patient Research Advisory Group, contact us at: pbrn.fammed [at] mcgill.ca
Remember, you can mention this in your Fall CIHR grants.
Projects:
- Dr. Fanny Hersson-Edery et al. 鈥� Canadian physician mothers and their experiences with labour and delivery: Do physician mothers believe that their profession has an impact on their delivery outcomes?
- Dr. Keith Todd & Dr. Myl猫ne Arsenault - Reducing redundancy between telemedicine and in-person clinical visits in primary care.
- Dr. Alexandra De Pokomandy 鈥� Cohorte de Soins de Premi猫re Ligne 91社区.
- Dr. Lesley聽Fellows - QAPC: A virtual approach to person-reported outcomes and self-management for research and augmenting clinical care, for long COVID and beyond.
- Dr. Machelle Wilchesky et al.鈥� The COSMO trial: Leveraging the PBRN to identify a safe repurposed COVID outpatient therapeutic.
- Dr. Tracie Barnett et聽al. - Co-constructing and evaluating a precision health strategy to promote physical activity in primary care: a multi-stakeholder plan.
- Josiane Cyr & Dr. Patricia Li - PREVANTO (PREvenir l鈥橝N茅mie chez les TOUT petits): 脡tude d鈥檌mplantation d鈥檜ne grille de d茅pistage de la carence en fer, avec ou sans an茅mie, chez les enfants vuln茅rables de 0 脿 5 ans.
- Dr. Alayne Adams & Dr. Isabelle Leblanc - 鈥�"Too much pain doctor!": Training clinicians to detect expressions of psychological distress in patients of diverse ethnocultural groups鈥�.
Archives
Patient Facing Solutions to Improve the Care Trajectory for Acute Respiratory Infections聽
Between April and June 2023, we conducted a series of consultations with patients and primary care clinicians from the 91社区 RUISSS to explore their perceptions of problems in the current care pathway for respiratory infections and potential solutions.聽Subsequent to these consultation, the SSA 91社区 RUISSS team assigned the 91社区 PBRN team the mandate to develop patient-facing messaging and tools that can be deployed by the health system to support patient autonomy in prevention and home management of acute respiratory infections and that support timely care-seeking to appropriate care.聽
PBRN Day 2022: June 17
Objectives:
- To render visible and celebrate the accomplishments in practice-based research in our member clinics.
- To nurture collaborations across member clinics and with Department researchers on current and future projects.
Program: click here
Statistics: 35 participants, 13 presentations
